ELSI Advisory Group

The Ethical, Legal and Social Implications advisory group (ELSIag) addresses ethical, legal and social issues that SPHN will face. It is composed of experts from various relevant fields such as bioethics, life sciences law, social sciences. It also includes representatives of the Swiss Academy of Medical Sciences (SAMS), swissethics, and patient advocacy groups. 

Members

Cyrill Berger

Office of the Federal Data Protection and Information Commissioner

Dr. med. Susanne Driessen

swissethics

David Haerry

EUPATI, Patient advocacy

Prof. Annegret Hannawa

Università della Svizzera italiana

Prof. Samia Hurst

University of Geneva

Ursula Koch

Krebsliga

Prof. Francesco Panese

University of Lausanne

Lic. iur. Michelle Salathé

Swiss Academy of Medical Sciences

Prof. Brigitte Tag

University of Zurich

Prof. Effy Vayena

ETH Zürich

Responsibilities

The ELSIag shall:

 

  • anticipate well-known challenges such as that of appropriated informed consent and privacy;
  • develop mechanisms and processes to handle unanticipated issues and require a swift solution;
  • advise the National Steering Board (NSB) in the development of guidelines for data sharing and managing questions of intellectual property, authorship and attribution according to national and international standards.

Chairperson

  • Chair: Prof. Effy Vayena

Next ELSI meetings

26. September 2017 (9h00 -12h)

 

13. November 2017 (13h30-16h)