ELSI Advisory Group

The Ethical, Legal and Social Implications advisory group (ELSIag) addresses ethical, legal and social issues that SPHN will face. It is composed of experts from various relevant fields such as bioethics, life sciences law, social sciences. It also includes representatives of the Swiss Academy of Medical Sciences (SAMS), swissethics, and patient advocacy groups. 

Members

Cyrill Berger

Office of the Federal Data Protection and Information Commissioner

Prof. Andrea Büchler

Private and comparative law (University of Zurich)

Dr. med. Susanne Driessen

Research ethics (swissethics)

David Haerry

Patient advocacy, EUPATI

Prof. Annegret Hannawa

Patient safety, communication science (Università della Svizzera italiana)

Prof. Samia Hurst

Bioethics (University of Geneva)

Ursula Koch

Patient advocacy (Krebsliga)

Prof. Francesco Panese

Studies of the relations between science, medicine and society (University of Lausanne)

Lic. iur. Michelle Salathé

Bioethics, health law (Swiss Academy of Medical Sciences)

Prof. Brigitte Tag

Health law (University of Zurich)

Prof. Effy Vayena

Bioethics, health policy (ETH Zurich)

Ex officio members

Dorothée Caminiti

Health law, bioethics, policy (ETH Zurich)

Responsibilities

The ELSIag shall:

 

  • anticipate well-known challenges such as that of appropriated informed consent and privacy;
  • develop mechanisms and processes to handle unanticipated issues and require a swift solution;
  • advise the National Steering Board (NSB) in the development of guidelines for data sharing and managing questions of intellectual property, authorship and attribution according to national and international standards.

Chairperson

  • Prof. Effy Vayena

Next ELSIag meetings

13. November 2017 (13h30-16h)